Sherry Tickle, Administrator, Natpara Support, DCP Team
-Patient and Caregiver info in one place will be tremendously helpful in furthering research into HPTH.
-Instead of trying to collect data from many places, it will be in one database.
-After all, it’s we the “patient” who knows HPTH the best, a centralized database will give us a louder voice to help researchers and clinicians.
-A global database to enter the info a HPTH patient/caregiver knows, doesn’t get any better.
-Our info, our experience with HPTH, all in one place to be accessed for further studies into our rare disease.
Loretta Gulley, Secretary HPTH, DCP Team
-One database for researchers to be able to understand better our quality of life or lack thereof.
-This type of global database can be a valuable asset to all who are looking to do research on us.
- There is only one way we can gain knowledge on a disease and that is through data. We need to take part in this!
