Important Links

Below are some links we feel may be of benefit to you. These links are not endorsements and we are not responsible for the content of their sites.

New resources on hypoparathyroidism are emerging all the time so if you run across any, let us know!  Also, if you find any incomplete links, we would be grateful if you would let us know at admin@hypopara.org. Thank you for helping us expand our resources!

APE/CECD (APS-1) SYNDROME

  • A 501(c)(3) nonprofit dedicated to Autoimmune Polyglandular Syndrome Type 1 (APS Type 1) also known as (APECED) Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy.

  • My vision is to link families and health professionals with sound and empowering information and with each other, to help maximize the quality of life for people with APECED (APS1). Jeannette is located in New Zealand.

HYPER-PARATHYROIDISM

  • List of research articles on hyperparathyroidism available from the NIH.

  • This area of endrocrineweb discusses all aspects of hyperparathyroidism.

  • Dr. Norman's site goes into detail on parathyroid disorders including hyperparathyroidism, parathyroid glands, adenomas, testing, and surgical options.

    (This is a commercial site by & for a particular physician's services & this is not endorsement)

  • Dr. Larian's site goes into detail on parathyroid disorders including hyperparathyroidism, parathyroid glands, adenomas, testing, and surgical options.

    (This is a commercial site by & for a particular physician's services; this is not endorsement)

HYPOPARATHYROIDISM

HYPOPARATHYROIDISM – TREATMENT AND MANAGEMENT

  • Understanding the Burden of Illness Association with Hypoparathyroidism Reported by Among Patients in the PARADOX Study

    This article explains the burden associated with hypoaparathyroidism - these are the results of a survey conducted with the participation of our members. You must be logged in to access this article. Help raise awareness, take a copy to your doctor!

  • Link to Shire's site on Natpara, the FDA approved PTH hormone replacement therapy for hypoparathyroidism.

  • The Merck Manual Professional Edition talks about Vitamin D - Deficiency, Dependency, and Toxicity

  • Link to page on Vitamin D3. Can also search on other medicines you are taking.

  • Get information on the medicines you are taking (ie calcitriol, rocatrol, etc.)

  • Proton-Pump Inhibitors and Hypomagnesemic Hypoparathyroidism (Published with permission)

    To the Editor: We report two cases of hypomagnesemic hypoparathyroidism associated with the use of proton-pump inhibitors, in which patients presented with carpopedal spasm in association with severe hypomagnesemia and hypocalcemia without an appropriate increase in the level of parathyroid hormone.

  • Got Milk? A new theory on the relationship between calcium and PMS (Published with permission)

    Premenstrual Syndrome (PMS) has been described as one of the most common disorders in females, afflicting millions of premenopausal women.

  • Calcium and PMS (Published with permission)

    If you're a woman who suffers from Premenstrual Syndrome (PMS) or a man who suffers with a woman who suffers, you'll be interested in this month's column. All you need to do is eat more yogurt, an excellent source of calcium, and your symptoms will improve or go away! It won't happen overnight, but with regular consumption of a diet high in calcium for at least two months, your PMS will lessen.

  • Factors that inhibit calcium absorption (published with permission)

    We focus on supplementing our diets with calcium, but we don't stop to….

MINERALS

MISCELLANEOUS INFORMATION

  • This is a physician locator service provided by the American Association of Clinical Endocrinologists, A.A.C.E. They do list Parathyroid disorders as a specialty.

  • This web site address for Needy Meds contains information about obtaining assistance for various prescription drugs at reduced cost or no cost to the patient. You will need to need to meet certain qualifications in order to participate in these programs.

  • “Our mission is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. We offer a single point of access to more than 475 public and private programs, including nearly 200 offered by pharmaceutical companies. We have already helped millions of Americans get free or reduced-cost prescription medicines.”

  • HealthBegin.com is a leading health website including sexually transmitted diseases, stroke health information, beauty, nutrition, physiology, alternative medicine, hospital, immunization, Medicare, Medicaid, pregnancy, physicians, dentists, prescriptions, hospitals, fitness, cancer..

  • Information from the Department of Justice on the American Disabilities Act. Some of these reports might be helpful in pursuing claims under the ADA.

  • While more difficult than sending them a letter, visiting your Members of Congress, or their staff, face-to-face is the most effective way to actually influence them. Individuals and groups can arrange personal meetings with Senators and Representatives either in their Washington offices, or in their local offices at various times during the year.

  • General information from the American Academy of Orthopedic Surgeons. I have listened to their humorous commercials for the past few years and always thought their general advice was good.

  • PLEASE NOTE THIS INFORMATION RELATES TO CONVERSIONS FOR PETS

  • An interesting article published in 1913 about Tetany and the Parathyroid Glands, written by W.G. MacCallum, MD and Karl M. Vogel, MD. Probably not too relevent today, but interesting from an historical perspective.

  • Unfortunately, medical misdiagnosis is not a rare phenomenon. About 15 percent of all patients are misdiagnosed, and half of those face serious harm, even death, because of the error. Contrary to the general impression that most misdiagnoses result from a technical foul-up, such as mislabeling someone’s X-ray or mixing up a blood

MOTIVATION

  • Look for some happy news for a change

  • In July 2006, a short 3-minute movie was launched on the Internet called The Dash. Since then, over 40 million people from around the world have watched it; and over 20,000 a day continue to watch it as a result of people passing it along.

  • # The "Moments in Time project" is a multidimensional, multimedia artistic expression of the concept of meaning in life. It began as a simple yet sophisticated black and white calendar but, over the last seven-years, has evolved into a kaleidoscope of colour.

    # The project portrays South African cancer patients, each afflicted with one or other type of cancer, all from different backgrounds, with different life experiences. Imagery and prose are used to tell each patient’s story.

OTHER FOUNDATIONS AND ASSOCIATIONS

OTHER MEDICAL DISORDERS

  • Addison's disease is the result of failure of the adrenal glands to produce their normal steroid hormones. Daily medication to replace these hormones enables a relatively normal lifestyle.

  • CSA is a member-based, 501(c)(3) non-profit support organization dedicated

  • Welcome to Elaine Moore's personal web site, which is intended for the support and education of patients with Graves' Disease (GD) and other autoimmune thyroid disorders.

  • The diagnosis of Graves' disease is usually easily made.

  • Fibromyalgia Network takes your pain, fatigue and brain-fog seriously ... and so should you!

  • Well, its history is quite interesting and worth reviewing, but first we need to step back and describe some terminology, so that everyone reading this will begin on the same footing.

  • The best treatment for osteoporosis is prevention. Once a fracture has occurred as a result of osteoporosis, it is effectively too late to implement the most effective treatment strategies.

  • Parathyroid hormone increases bone strength primarily by stimulating bone formation, whereas antiresorptive drugs reduce bone resorption. We conducted a randomized, double-blind clinical study of parathyroid hormone and alendronate to test the hypothesis that the concurrent administration of the two agents would increase bone density more than the use of either one alone.

  • FDA has approved teriparatide for the treatment of osteoporosis in postmenopausal women who are at high risk for having a fracture. The drug is also approved to increase bone mass in men with primary or hypogonadal osteoporosis who are at high risk for fracture.

  • Dietary Calcium Protects Bones Better (Published with permission)

    ST. LOUIS - Most women know that calcium is critical in preventing osteoporosis, the disease of progressive bone loss and fractures that affects millions of Americans.

  • Disease characteristics. Familial idiopathic basal ganglia calcification (FIBGC) is a neurodegenerative disorder with characteristic calcium deposits in the basal ganglia and other brain areas visualized on neuroimaging.

  • The website of Attention Deficit Disorder Resources has over 150 articles written by national ADHD authorities as well as adults with ADHD. Plenty of information for parents too. 100 plus links to ADHD-related websites. Includes the National ADHD Directory with over 1100 ADHD Service Providers listed as well as a National ADHD Events Calendar. Free monthly eNews available.

  • Our Association, F.I.R.M.O.- Fondazione Raffaella Becagli Onlus, is a non-profit Association whose main goal is to support the research in the area of the prevention and treatment of skeletal diseases in Italy. The Association has been recently established in Florence, and it also has recently launched its new website

  • Barakat syndrome, also known as HDR syndrome, was first described by Barakat et al in 1977 and is an inherited condition characterized by hypoparathyroidism, sensorineural deafness and renal disease. Patients usually present with hypocalcaemia, tetany, or afebrile convulsions at any age. Hearing loss is usually bilateral and may range from…

PARATHYROID GLAND/PARATHYROID HORMONE

  • The key to these questions is to understand where parathyroids come from. When you understand this, you will understand why parathyroid anatomy is some of the most variable anatomy in the human body--and why it is VERY important to get a very experienced parathyroid surgeon to perform your parathyroid surgery (read more)

  • Most people have four pea-sized glands, called parathyroid glands, on the thyroid gland in the neck. Though their names are similar, the thyroid and parathyroid glands are completely different. The parathyroid glands make parathyroid hormone (PTH), which helps your body keep the right balance of calcium and phosphorous.

    This section is the National Library of Medicines Med line Health Topics page for Parathyroid Disorders. it contains a wealth of information about parathyroid disorders.

  • You can use the "search" engine on their web site and type in "Parathyroid Glands" for microscopic views of the parathyroid glands.

  • Parathyroid.com is the Internet's largest collection of parathyroid articles. Parathyroid disease, parathyroid hormone activity, parathyroid tumors, and parathyroid surgery are all discussed in easy to read language with pictures and illustrations.

  • The sole provider of the “PTH Accuratio™ -- 1-84 PTH/7-84 PTH ratio Link is to patient information.

  • Most people have four pea-sized glands, called parathyroid glands, on the thyroid gland in the neck. Though their names are similar, the thyroid and parathyroid glands are completely different. The parathyroid glands make parathyroid hormone (PTH), which helps your body keep the right balance of calcium and phosphorous.

    This is the National Library of Medicine Medline Health Topics Page. it contains a wealth of information on Parathyroid Disorders.

PATIENT INFORMATION

PATIENT STUDIES

  • CenterWatch first launched the Clinical Trials Listing Service in 1994 to assist patients in finding and volunteering for clinical trials. Today, CenterWatch has the largest online listing of actively recruiting clinical trials and is one of the most trusted resources for patients interested in clinical trial participation receiving more than 1.5 million unique patients visitors annually. To search our clinical trial listings and find other patient education resources, visit www.centerwatch.com.

  • ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

RESEARCH AND EDUCATIONAL AIDS

  • CenterWatch first launched the Clinical Trials Listing Service in 1994 to assist patients in finding and volunteering for clinical trials. Today, CenterWatch has the largest online listing of actively recruiting clinical trials and is one of the most trusted resources for patients interested in clinical trial participation receiving more than 1.5 million unique patients visitors annually. To search our clinical trial listings and find other patient education resources, visit www.centerwatch.com.

  • ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

  • Welcome to the largest web site for Thyroid, Parathyroid and other Endocrine Disorders. This information is intended for the education of patients and their families. There are over 130 very detailed but easy to understand pages on endocrine disease, conditions, hormone problems, and treatment options including all types of thyroid,

  • Merck is committed to providing excellent information, and as part of that effort, Merck provides all of The Merck Manuals as a service to the community.

THYROID DISORDERS

  • The American Foundation of Thyroid Patients appreciates your interest in our organization. A non-profit organization, The American Foundation

  • The ATA provides outstanding leadership in thyroidology by promoting excellence and innovation in clinical care, research, education, and public policy.

  • Center for Research, Education, and Treatment of Thyroid Disorders

  • Thyroid Australia is a support organization for people with thyroid conditions as well as their families and their friends.

  • ThyCa: Thyroid Cancer Survivor's Association, Inc. - We are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. We also sponsor Thyroid Cancer Awareness Month, year-round awareness activities, and thyroid cancer research fundraising and research grants.

  • This website addresses Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), Cherubism and related diseases. Our goal is to improve the quality of life for affected individuals and their families.

Our Supporters