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HypoPARAthyroidism is a challenge we face together. You are not alone!

2021 VIRTUAL INTERNATIONAL HYPOPARA CONFERENCE

A Three Day Virtual Event featuring Cutting Edge Presentations from Leading Doctors, Researchers and Experts in HypoPARAthyroidism

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2021 International HypoPARA Virtual Conference

The plans are in the works! Set your calendar and get ready for another International HypoPARA Conference with cutting edge presentations from leading doctors, researchers and experts in the field of HypoPARA.

More info coming soon
It's the Biggest Day of the Year!

World HypoPARA Awareness Day is a global event celebrated every year on June 1st. Its observance brings increased awareness of hypoparathyroidism and the all-important need for better education, improved diagnosis and new treatment options for this rare and complex disorder.

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FDA grants Fast Track Designation for Encaleret for the Treatment of ADH1

BridgeBio, the parent company of Calcilytix, is excited to share this information and what it means for patients with autosomal dominant hypocalcemia (ADH1)

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Takeda Provides Updates Regarding Timeline to NATPARA US Resupply

Listen to the actual recording of the video teleconference with the US HypoPARA community

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Update: First Listening Session with the FDA was Successful!

An important and ground breaking step to getting more treatment options available to HypoPARA patients.

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FREE Genetic Testing Available to HypoPara Patients.

No-charge genetic testing for AD-H1 now available for patients with non-surgical HypoParathyroidism.

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Our Mission

To improve the lives of people impacted by hypoparathyroidism through education, support, research, and advocacy.

We are here to raise awareness of HypoPARAthyroidism and to bring change to the lives of those affected. With your help we can make a difference. Learn more and get involved.

The Diagnosis

Know what it means to have HypoParathyroidism and how to manage it. Learn how to become an advocate for yourself and how to work with your doctor.
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Getting Help

As daunting as it may seem, you are not alone. HypoPara is a rare and chronic condition. Our resources will help you navigate the ins and outs of getting help.
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Programs and Events

We offer ongoing video classes with doctors and specialists on HypoPara along with an annual three day conference covering all the latest information from research to treatments.
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NEWS & EVENTS

July 12, 2021

Takeda Supply Update for the NATPARA Special Use Program

There has been a shipment delay of NATPARA 75mcg. Patients will be receiving alternate prescriptions, temporarily. They will revert back to their original prescription once available.

June 14, 2021

Expected Supply Disruption for Special-Use 100 mcg Dose of Natpara

Explanation from Takeda on supply disruption

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Your Questions Answered

It's not always HypoPara but when it is, this is what you need to know.
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Share Your Story

Let others know what its like living and coping with HypoPara and read their experiences too.
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