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HypoPARAthyroidism is a challenge we face together. You are not alone!

Takeda Update on Status of Natpara recall in the US

Just In: More information on SUP supply and recall status

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2020 Survey Describes the Disease Burden of Patients Living with Hypopara

The Voices of Hypopara survey reinforces the need for better treatment options as well as greater understanding among health care workers.

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NEWS RELEASE: BridgeBio pharma announces proof-of-concept data of Encaleret in ADH1 at the Endocrine Society’s 2021 annual meeting

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Ascendis Pharma is starting Phase 3 Clinical Trial of TransCon PTH

Check out the Pathway Trial and see if you are eligible. Both short-term symptoms and long-term complications of HypoPara are addressed with TransCon PTH.

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Update: Listening Session with the FDA is Scheduled

Next step to getting more treatment options available to Hypopara patients.

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Bring Back Natpara: FDA Must Help Hypopara Sufferers

Agency must show the same urgency for these Americans that it shows for treatment of COVID-19. Article from The Washington Times.

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FREE Genetic Testing Available to HypoPara Patients.

No-charge genetic testing for AD-H1 now available for patients with non-surgical HypoParathyroidism.

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Our Mission

To improve the lives of people impacted by hypoparathyroidism through education, support, research, and advocacy.

We are here to raise awareness of HypoPARAthyroidism and to bring change to the lives of those affected. With your help we can make a difference. Learn more and get involved.

The Diagnosis

Know what it means to have HypoParathyroidism and how to manage it. Learn how to become an advocate for yourself and how to work with your doctor.
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Getting Help

As daunting as it may seem, you are not alone. HypoPara is a rare and chronic condition. Our resources will help you navigate the ins and outs of getting help.
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Programs and Events

We offer ongoing video classes with doctors and specialists on HypoPara along with an annual three day conference covering all the latest information from research to treatments.
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NEWS & EVENTS

March 31, 2021

Just In: Takeda Update on Status of Natpara Recall

More information on SUP supply and recall status

March 24, 2021

Update: FDA Listening Session is Scheduled!

We have been granted a Listening Session with the FDA to let them know what its really like to live with HypoPara and why advances in research are needed to find better treatments.

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Your Questions Answered

It's not always HypoPara but when it is, this is what you need to know.
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Share Your Story

Let others know what its like living and coping with HypoPara and read their experiences too.
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